Tuesday, August 9, 2016

Progress - August 9th, 2016

You haven't been drinking the best since getting your tongue and lip ties revised since you have to relearn how to use your tongue. It has been a rough road. We know that it takes two weeks for it to heal and to hopefully see improvement. Tomorrow will be one week since you have had the procedure done. You have been taking half of what you did before the procedure.
Today a friend came over and we were going to bake cupcakes. We baked cookies last week and had a blast so we decided to do it again this week. Last week when she was over, you took a lot from your bottle. Today when she was here, you took 30 ml not once, but twice! Today was the first day that you took 30 ml (the most we are putting in your bottle right now) since your procedure! I did one thing a little different, and that was putting my finger under your jaw to stabilize it while you are drinking so you don't have to do as much work. I learned that in the NICU from the SLP. One of the times that you took 30 ml, you didn't even dribble milk out the side of your mouth! Progress! We still have A LOT of work to do, but I will take it!
We are still trying to work with you on the suck training, and you rarely will take your pacifier. We continue to do your stretches 4 times a day (which you absolutely HATE). You just started to do the suck training yesterday which was exciting. One step at a time. I continue to work with you every day on your stretches, suck training, and trying to get you to take the pacifier. It is very time consuming, but in my mind, it is all worth it. We do this in addition to everything that PT and OT ask us to do 3 times a day. I am blessed to be able to be home to work on you with all of this. I have no idea what I would do if I wasn't able to be home with you right now. It is a lot of work, but I wouldn't have it any other way.
Tomorrow we have the doctor which the appointment was to talk about your feeding since we can't get into the feeding team until the middle of next month. Your pediatrician is on vacation so I am not too positive that we will get any information on how to progress from where we are now. We have PT tomorrow, and we are also going to the breastfeeding clinic tomorrow. Very busy day. I already can't wait to get home and relax!
We love you so much and love how much you are talking to us! You are starting to grab things better and you are definitely swatting at the hanging animals on your activity gym! You are doing well with holding your head up as well. As far as tummy time, you are getting lazy and just laying on your belly (which you love by the way). Hopefully we start to do better with tummy time! Other than that, you are doing fantastic!